Dementia Matters

COVID-19 Special Series The pandemic has placed a significant strain on the mental, social, and physical wellbeing of many caregivers, as well as individuals with cognitive decline. Our guest discusses COVID-19’s impact on underserved communities, offers communication tips, and reminds people to practice self-care. Guest: Andrea Gilmore-Bykovskyi, PhD, RN, University of Wisconsin-Madison School of Nursing  Episode Topics:  Caregiver considerations for a pandemic. 2:31 Self Care for caregivers. 6:05 How the pandemic is affecting caregivers from underserved communities. 10:55 Recommendations for caregivers when planning a trip to a medical facility. 13:51 Advice for families trying to communicate with loved ones who are hospitalized. 15:36 Tips for communicating with loved ones in a care facility. 17:43 What caregivers should know for the future. 21:05  Show Notes: All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website, and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, MA, of the Surgery Sett podcast who has a special series called The Frontlines of COVID.

COVID-19 Special Series Stress, fear, and anxiety are common responses to the uncertainty during the COVID-19 pandemic. However, with the regular practice of mindfulness, the meditative process of bringing your attention to your body in the present moment, has been seen to help calm the worry. Our guest joins us to discuss using mindfulness methods to maintain and mange an overall wellbeing. Guest: Vincent Minichiello, MD, University of Wisconsin School of Medicine and Public Health Episode Topics: How do you define mindfulness? 2:55 How does mindfulness affect our body? 5:15 Is it common to feel muscle relaxation while practicing mindfulness? 8:24 What are mindfulness-based interventions? 9:54   Can mindfulness be health focused? 13:36 Where do you see mindfulness fitting into healthcare, especially during the pandemic? 14:01 How can mindfulness be useful during the COVID-19 pandemic? 16:11 Can mindfulness be beneficial for individuals with cognitive impairments and caregivers? 18:21 Where should you begin with a mindfulness practice? 20:20 How helpful are online or phone apps for mindfulness practices? 22:50 What are you doing to maintain your wellbeing during the COVID-19 pandemic? 25:18 Show Notes: For listeners local to Madison, the UW Health Mindfulness Program offers in-person classes. They have also expanded to online classes due to the pandemic. Another great resource is The Center for Healthy Minds at the University of Wisconsin–Madison. Apps our guest recommends are Mindfulness Coach, Calm, Buddhify and Headspace. A good starter book is Wherever You Go, There You Are by Jon Kabat-Zinn. All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website, and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, MA, of the Surgery Sett podcast who has a special series called The Frontlines of COVID.

COVID-19 Special Series As a result of the COVID-19 pandemic visiting and communicating with people living with memory loss, whether at home or in a care facility, has become more difficult. Our guest joins us to outline the different ways to communicate remotely, how rural communities are adapting to this change and methods to help caregivers cope. Guest: Becky DeBuhr, MS, Program Director, Alzheimer’s & Dementia Alliance of Wisconsin. Episode Topics: Ways for caregivers to connect with loved one:o    Technology 3:02o    Window visits 4:41o    Mail 6:00 What can families reasonably ask of professional caregiving staff? 9:22 How can family members communicate their support remotely? 12:45 How are caregivers in rural communities being affected? Is there a difference in urban communities? 15:09 Methods to help caregivers cope now and post-pandemic. 17:40 Key tips for caregivers at home or in a facility. 20:21 Show Notes: To learn more about the Alzheimer’s & Dementia Alliance of Wisconsin call 888-308-6251 or email support@alzwisc.org. The Wisconsin Department of Health Services provides guidance for all long-term care facilities, assisted living facilities, and facilities serving people with developmental disabilities in Wisconsin caring for patients who are elderly and/or have chronic medical conditions that place them at higher risk of developing severe complications from COVID-19. All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website, and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, MA, of the Surgery Sett podcast who has a special series called The Frontlines of COVID.

COVID-19 Special Series The field of telemedicine offers a diverse range of medical support services through telecommunication. Under the global pandemic, many providers have moved to telemedicine to assist their patients. Our guest discusses the advantages and disadvantages to using video and phone doctor visits and offers tips for best use of the services. Guest: Steve Barczi, MD, University of Wisconsin School of Medicine and Public Health Episode Topics: What is telemedicine? 3:25 Benefits of telemedicine 8:04 Downside of telemedicine? 11:05 Is telemedicine covered by insurance? 13:30   How has COVID-19 changed the utilization of telemedicine? 18:27 Key takeaways 24:20 Telemedicine tips for people with cognitive impairments and older adults 25:05 How to prepare for a telemedicine visit 28:14 Best practices for a telemedicine visit 30:45 Show Notes: All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website, and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, MA, of the Surgery Sett podcast who has a special series called The Frontlines of COVID.

COVID-19 Special Series This episode discusses the work done by The Alzheimer’s Association, an organization focused on providing community education and assistance to all affected by Alzheimer’s disease or other dementias. Our guest details how care and support services have quickly adapted to keep families and loved ones safe, healthy, and connected under quarantine. Guest: Kate Kahles, Program Manager, Alzheimer's Association Wisconsin Chapter Episode Topics: How have support groups changed under the pandemic? 2:53 Alzheimer’s Association Helpline 5:50 Types of support groups 7:15 Advice for coping with the anxiety from having a loved one in a facility 9:00 Outreach to rural communities 12:28  How has the stay-at-home order affected caregivers? 13:49 Activities for caregivers and persons living with dementia 16:59 Advance care planning 19:24 Key services 20:14 Show Notes: To learn more about the Alzheimer’s Association and support services near you go to the Community Resource Finder or call the helpline at 1(800)272-3900. All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites. You can also find resources on our website, and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, MA, of the Surgery Sett podcast who has a special series called The Frontlines of COVID.  

COVID-19 Special Series The National Family Caregiver Support Program (NFCSP) offers information, support, and resources to assist family caregivers (spouse, adult child, other relative, friend or neighbor) with their concerns related to caregiving. COVID-19 has impacted many resources and supports. Funding is available to help. This episode delves into what the program offers and ways to support caregivers and care recipients especially during the pandemic Guest: Jane DeBroux, Caregiver Program Coordinator, Dane County Area Agency on Aging Episode Topics: What is the National Family Caregiver Support Program? 2:55  How has the COVID-19 pandemic changed the program? 4:02 What does the program offer? 4:43 What are the eligibility requirements? 10:20 Show Notes: To learn more about the National Family Caregiver Support Program (NFCSP) program in your county reach out to your local Area Agency on Aging or Aging & Disability Resource Center. If in Dane County, Wisconsin, contact Jane DeBroux at (608) 261-5679. For all other Wisconsin counties go to wisconsincaregiver.org. All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website, and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, MA, of the Surgery Sett podcast who has a special series called The Frontlines of COVID.

COVID-19 Special Series This episode continues our conversation with Art Walaszek, MD, focusing on the psychological and behavioral effects of the COVID-19 pandemic. Our guest helps us understand the fears and anxieties that are heightened during this time and recommendations to help best handle the increased stress. Guest: Art Walaszek, MD, Geriatric Psychiatrist, University of Wisconsin School of Medicine and Public Health Episode Topics: How do we handle our own fear during the pandemic? 6:00 What can you do to calm stress and anxiety before bed? 14:45 Do you have any specific recommendations for individuals with cognitive impairment or their caretakers facing increased anxiety? 23:51 Show Notes:  All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, of the Surgery Sett podcast who has a special series called "The Frontlines of COVID."

COVID-19 Special Series This episode begins our pivot to addressing the important issues facing individuals during the current COVID-19 pandemic. We will speak to researchers and doctors discussing the present and future impact of the pandemic on those with cognitive impairment and those without. We are starting with a two-part series on the psychological and behavioral consequences of the pandemic. Our guest, Art Walaszek, MD, speaks on the effects of social distancing and how individuals or caregivers can stay healthy during this time. Guest: Art Walaszek, MD, Geriatric Psychiatrist, University of Wisconsin School of Medicine and Public Health Episode Topics: Does social distancing negatively affect you? 5:00 How does this affect individuals with cognitive impairment or their caregivers? 11:00 What can we all do to prevent any negative effects from social distancing? 15:30 Show Notes:  All of the important issues happening right now cannot be fully covered, so we strongly encourage you to go to trusted sources for specific information, such as the U.S. Centers for Disease Control and Prevention, your state and local health department websites, and the Alzheimer's Association. You can also find resources on our website and that of the Wisconsin Alzheimer's Institute. For other interesting and important stories on the COVID-19 pandemic, I would recommend my colleague at UW Health Jonathan Kohler, MD, of the Surgery Sett podcast who has a special series called "The Frontlines of COVID."

This episode offers an overview of the current tools doctors use to examine Alzheimer’s disease risk in their patients, as well as new techniques in development. Our guest discusses the science behind risk testing for dementia, as well as the potential for a low-cost risk test. Guest: Sanjay Asthana, MD, associate dean for gerontology at the University of Wisconsin School of Medicine and Public Health and director at the Wisconsin Alzheimer’s Disease Research Center  Episode Topics: What are the current tools that doctors have for understanding risk for dementia? 0:52 Memory clinic patient experience: 3:02 What is the difference between risk scores and calculators? 6:16 Genetic testing: 7:29 Risk and interventions for a diverse population: 13:17 How close is a low-cost risk test? 17:39 What do you do to reduce your risk for developing Alzheimer’s disease? 19:12

This episode explores genetic risk factors for early- and late-onset Alzheimer’s disease. Host Nathaniel Chin and guest Corinne Engelman discuss the research looking into genetic risk for Alzheimer’s disease and the uncertainty that comes with genetic testing. Guest: Corinne Engelman, MSHP, PhD, associate professor, Department of Population Health Sciences, University of Wisconsin School of Medicine and Public Health Episode Topics: What are the genetic influences on a person’s risk for Alzheimer’s disease? 2:07 What genes affect individuals with early-onset dementia? 2:56 What is the impact of genes that counter one another? 5:34 How much can our lifestyle choices affect our genetic risk? 7:52 How is the genetic testing being analyzed? 9:03  What can at-home genetic testing tell us about Alzheimer’s disease? 10:06 How essential is the role of genetic counselor? 11:47 Have we found any genetic risks related to the aging process? 13:21 What advice do you have for people interested in maximizing their genetic outcome when it comes to Alzheimer's disease risk? 14:40 

Our guest, Dr. Kimberly Mueller, joins us to discuss cognitively stimulating activities and the impact of social engagement on brain health. Guest: Kimberly Mueller, PhD, CCC-SLP, Assistant Professor, Department of Communications Sciences and Disorders, University of Wisconsin-Madison Episode Topics: What are cognitively stimulating activities? 1:25 Recent studies: 2:50 Are some activities better than others? 9:00 Are Jeopardy or other “active” television shows considered cognitively stimulating? 10:23 Are board games, crossword puzzles, and brain games considered cognitively stimulating activities? 11:22 Is there evidence showing the benefits of social engagement? 15:08 Advice for maintaining and strengthening brain health: 18:37

In this bonus episode, we continue our conversation with Dr. Howie Rosen on Frontotemporal Dementia (FTD). On last week’s episode, Dr. Rosen spoke on the genetic risk factors, trajectories and family caregiving experiences of FTD. Now, our conversation turns to the research looking into how the disease affects self-awareness, biomarkers and early detection, as well as ways people can volunteer for a research study. Guest: Howard “Howie” Rosen, MD, behavioral neurologist at the University of California San Francisco Memory and Aging Center Episode Topics:         FTD and self-awareness: 1:10         Research into biomarkers for Frontotemporal Dementia: 4:42         How can people help the research: 11:40

Frontotemporal dementia (FTD) is a type of dementia caused by degeneration in the temporal and frontal lobes of the brain. Our guest discusses the symptoms, risk factors, prevalence, and course of the disease, along with information on how a doctor diagnoses FTD and what families and caregivers can do after diagnosis. Guest: Howard “Howie” Rosen, MD, behavioral neurologist at the University of California San Francisco Memory and Aging Center Episode Topics: A definition of Frontotemporal Dementia (FTD) 1:02 How common is FTD? 3:53 Genetic risk factors of FTD: 4:30 Non-genetic risk factors of FTD: 6:40 Symptoms of FTD: 8:40 How a clinician diagnoses FTD: 14:03 What is the course of the disease? 16:20 What to do after a diagnosis: 18:51 Family and caregiver experience of FTD: 22:36 Community support and networking: 25:53

Our guests, Dr. Rebecca Koscik and Dr. Tobey Betthauser, are researchers investigating the trajectory of amyloid and tau proteins over time and the significance of amyloid chronicity. Koscik and Betthauser discuss their two recent publications on the topic and how amyloid PET scans have helped scientists better understand the early brain changes associated with Alzheimer’s disease. Guests: Rebecca Koscik, PhD, senior scientist, Tobey Betthauser, PhD, postdoctoral fellow, University of Wisconsin-Madison In this episode, we discuss ... How amyloid PET tracers work 7:17 Published research on amyloid duration 12:01 Research supporting amyloid chronicity 18:14

Our guest is Dr. Sterling Johnson, associate director of the Wisconsin Alzheimer’s Disease Research Center and principal investigator of the Wisconsin Registry for Alzheimer's Prevention (WRAP) study at the University of Wisconsin-Madison. The WRAP study is one of the largest and longest-running observational studies of Alzheimer's disease in the world. Dr. Johnson shares study findings, discusses advancements in brain imaging, and introduces the concept of amyloid chronicity. Guest: Sterling Johnson, PhD, professor of medicine (geriatrics), University of Wisconsin School of Medicine and Public Health Show Notes: What is the WRAP study? 3:28 Findings from the study: 8:06 WRAP studies outside of Wisconsin: 10:59 What is amyloid chronicity? 15:19