ALS Podcast

Each year, hundreds of ALS advocates go to Washington, DC to share their stories with their members of Congress and seek continued funding for ALS research. In this podcast episode, Public Policy Director Tony Heyl and Chapter Care Services members Alisa Brownlee and Melissa Coll discuss the ins and outs of ALS Advocacy, how to organize a meeting, and how to navigate Capitol Hill.   Listen, subscribe, and get involved at www.alsphiladelphia.org or www.alsa.org 

One of the most valued parts of The ALS Association Greater Philadelphia Chapter's Care Services is the Howard I. Abrams In-Home Care Program. In this podcast, Chapter social worker Wendy Barnes discusses how she runs the In-Home Care program, what the goals of the program are, how it has evolved over the years and grown to help more families, and how she makes sure that everyone gets the right fit for a caregiver.   Listen, subscribe, share, and make sure to donate to support this program at www.alsphiladelphia.org 

For the tenth year in a row, Tom Scamuffa and his Team Scamuffa ae hosting a Car Show in Wagontown, PA to help raise money for ALS care and research. In this Talk to Defeat ALS podcast, Tom talks about the inspiration for his car show event, what people can expect to see this year, and learn how you can join him for this year's Team Scamuffa Car Show on Saturday, April 28. Listen, share, and then learn more at https://teamscamuffa.shutterfly.com or email teamscamuffa@gmail.com   

The Arthur and Lea R. Powell Care Services Department is the heart of The ALS Association Greater Philadelphia Chapter's mission. In this special Talk to Defeat ALS podcast, Director of Care Services Steve Spaulding provides an overview of his department, how it is organized to best serve families affected by ALS, and how the Chapter is improving these programs to ensure that each person with ALS gets the quality care that they need. Listen to Steve highlight the various levels of care provided, share this podcast with others, subscribe on iTunes, and make sure to donate or get involved in the fight against ALS at www.alsphiladelphia.org Follow us on social media @alsphiladelphia 

Father John Wagner has lived an exciting and inspired life. He has helped design airports, traveled the world, raised a family, and provided comfort for those in need. In this podcast, Father John talks with us about his life and about his path to becoming diagnosed with ALS, how he shared that news with his church and friends, his involvement in the Walk to Defeat ALS, and his hope for others, particularly caregivers. Listen, subscribe on iTunes, and then get involved today in the fight against ALS at www.alsphiladelphia.org 

Over 15 years ago, Bob Goudie and the Goudie family launched the Ocean City Board...Walk to Defeat ALS in honor of Bob's wife. Since then, the walk has raised millions of dollars to support the fight against ALS and raised hope for many ALS families in New Jersey and beyond. In Part Two of our two part Talk to Defeat ALS series with the Goudie family, Bob, Kevin, Debby, and Sam talk about the people who have inspired them over the past 15 years, the incredible support from Village ShopRite and the Ocean City community, and how they continue to innovate the walk each and every year. Listen, share, subscribe, and make sure to Register and Donate for the 2017 Ocean City Board...Walk to Defeat ALS on Saturday, September 16 at www.oceancitywalktodefeatals.org 

Over 15 years ago, Bob Goudie and the Goudie family launched the Ocean City Board...Walk to Defeat ALS in honor of Bob's wife. Since then, the walk has raised millions of dollars to support the fight against ALS and raised hope for many ALS families in New Jersey and beyond. In Part One of our two part Talk to Defeat ALS series with the Goudie family, Bob, Kevin, Debby, and Sam talk about their team Jo's Rowdy Goudies and about how the walk began, gaining support in the community, making new friends in the ALS cause, and why they continue to build every year. Listen, share, subscribe, and make sure to Register and Donate for the 2017 Ocean City Board...Walk to Defeat ALS on Saturday, September 16 at www.oceancitywalktodefeatals.org 

In Part 2 of the What Happened When Podcast, Joan Borowsky continues to look back on her 20 years with The ALS Association Greater Philadelphia Chapter with stories on the Philadelphia Phillies, the Billy Lake Basketball Marathon, the Walk to Defeat ALS, and more. You will understand more about how The ALS Association doesn't look at ALS families as a list or patients as another statistic, but instead looks at everyone as individuals with their own powerful stories. Listen, share, subscribe on iTunes and make sure to join us at the 40th Anniversary Gala on November 9 by getting tickets at www.alsphiladelphia.org/gala 

2017 marks the 40th anniversary of The ALS Association Greater Philadelphia Chapter. It also marks the 20 year anniversary of Joan Borowsky working at the Chapter to support ALS families! In this special podcast series called What Happened When, Joan talks about some of her favorite moments in her two decades with the Chapter, funny times with the Phillies, and early memories meeting people who are leading the fight against ALS.   Listen, share, subscribe, and then join us for our 40 year anniversary gala on November 9 at www.alsphiladelphia.org/gala 

Mike Deeley was diagnosed with ALS less than one year ago and in that time, he has already done a great deal to advance the mission of The ALS Association and fight for quality ALS care and research. In this podcast, Mike talks about the military connection to ALS, how he first noticed symptoms, and how he has started to get involved helping others. Listen, subscribe, share, and do more for the ALS cause at www.alsphiladelphia.org and follow on social media @alsphiladelphia 

In part 2 of our Podcast discussion with Mike Deeley, he shares more about how he is working to support ALS patient care and research through advocacy and local events. Mike shows that as tough as ALS is, he's even tougher, and he's proving that with his rugby events and challenge through https://rugbysmashals.org/  Listen, share, and watch their video at https://rugbysmashals.org/ as well as find more ways to advocate and donate at www.alsphiladelphia.org Make sure to follow on social media @alsphiladelphia as well!    Thank you to Mike Deeley for sharing his ALS story and for his service to the country as a US Navy veteran. 

2017 marks the 40th Anniversary of The ALS Association Greater Philadelphia Chapter and part of Advancing the Mission includes expanding access to quality care for people with ALS and their families. The most important way to do that is through the ALS Clinics. In this podcast, Dr. Mary Sedarous discusses her team's work at the Hackensack Meridian ALS Center and their part in the ALS mission. As part of this podcast, Dr. Sedarous talks about the complications of ALS care, the benefits of a multidisciplinary approach, how her team works together, her experience with ALS, and her support of the Walk to Defeat ALS and other events. Listen, share, subscribe on iTunes, and get involved today at www.alsphiladelphia.org/40years   

George Pagano did something that few others have ever been able to do. In 2015, George rowed across the Atlantic Ocean, along with his rowing partner Caitlin Miller as part of the Talisker Whiskey Atlantic Challenge. He did it all to raise money to fight ALS in memory of his grandfather. In this podcast, George talks about the preparation for his journey, the help he got along the way, and how being on the open water got him closer to the ALS cause. Listen, share, subscribe on iTunes, and also learn more at http://www.thecranialquest.com/  Join the fight against ALS by donating, volunteering, or advocating at www.alsphiladelphia.org 

Friend of the 'Pod Marcia Telthorster joins Tony Heyl and Jamey Piggott to talk about the upcoming Ride to Defeat ALS and her team, Legs 4 Greg, honoring her husband Greg Telthorster. Marcia and Jamey discuss the logistics of the ride, how it can be fun and challenging, the end point at Morey's Piers, and why this event has been so special for the Telthorster family. Listen, subscribe on iTunes, share the podcast, and join Legs 4 Greg and other teams at the Ride to Defeat ALS by registering or donating at www.als-express.org 

Nurses Week is the first week of May. The ALS Association Greater Philadelphia Chapter is thrilled to have exceptional nurses on staff to provide quality care to ALS families. In this Podcast, three ALS Association nurses who work at the ALS Treatment Center at Penn State Hershey Medical Center talk about working for the Chapter, what kind of work they do on a daily basis, and why they became nurses in the first place. Listen to nurses Sue Walsh, Maureen Reid, and Annette Miller discuss their different paths to nursing and their equally different paths to ALS and then join them for the Hershey Walk to Defeat ALS at www.hersheywalktodefeatals.org  Find more ways to get involved at www.alsphiladelphia.org