Patients Have Power! show

Patients Have Power!

Summary: Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power. Special thanks to our friends Play By Numbers for letting us use their track "Asphalt"!

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 Episode Twelve - "Welcome to Thirty" | File Type: audio/mpeg | Duration: 00:30:57

Erika - a friend who found us through Instagram - became the first guest to come through the brand new Clara offices for a podcast! Erika is the embodiment of patient power. She sits down with Lilly to talk through her self-diagnosis journey and how she learned to own her health.

 Episode Eleven - "I was, like...Are you kidding me?" | File Type: audio/mpeg | Duration: 00:25:17

Aaron and Lilly catch up over a glass (or two) of wine to talk about her keynote speech at the Interdisciplinary Autoimmune Summit, where Lilly used her platform to talk about administrative burdens placed on patients. And we're now a video podcast! You can watch us at our Youtube channel here:

 Episode Ten - Our Voice Is Our Voice | File Type: audio/mpeg | Duration: 00:27:32

Adi speaks to Lilly about taking a year off to fight a brain tumor with a clinical trial, multiple specialists, and a surgery on his brain...while he was still awake!

 Episode Ten - "Our voice is our voice." | File Type: audio/mpeg | Duration: 00:27:35

Adi speaks to Lilly about taking a year off to fight a brain tumor with a clinical trial, multiple specialists, and a surgery on his brain...while he was still awake!

 Episode Nine - "Everybody will tell you, You should be eating kale." | File Type: audio/mpeg | Duration: 00:24:29

Wherein Lilly and Aaron chat about the exciting new therapies going into trials that focus on methods beyond drugs, such as stem cell and fecal transplants, and diet and lifestyle changes. Also: How stem cells are like Minions, the struggles of finding the right condiments in the grocery store, and a fierce debate about Aaron's vegetarianism.

 Episode Eight - "I get to be the first one." | File Type: audio/mpeg | Duration: 00:33:26

Ali ( a runner, podcast host, writer, and patient advocate. She joins Lilly between training runs and her jam-packed work schedule to talk about her Crohn's, overcoming her fear of clinical trials, and banning her husband from...the bathroom?

 Episode Seven - "I cannot afford to go back." | File Type: audio/mpeg | Duration: 00:29:50

Lilly is joined by Aaron, Clara's Head of Growth, to chat about the various impacts disease can have on a patient's financial stability and how we can come together to share resources, beat stigma, and help improve the healthcare landscape for all patients.

 Episode Six - "I can't tell you how many parking lots I've cried in." | File Type: audio/mpeg | Duration: 00:27:35

On this International Women's Day, Rebecca Black, aka Boss Lady Resale, joins Lilly to chat about her self-diagnosis journey and how she learned to take her health into her own hands.

 Episode Five - "I just knew something was wrong." | File Type: audio/mpeg | Duration: 00:24:46

Aaron (@aaronblockerIBD) and Lilly catch up at the Crohn's and Colitis Congress in Las Vegas to chat about his passion for research, science, and patients, and how his patient power set him on a path to a new diagnosis.

 Episode Four - "Ya can't teach compassion." | File Type: audio/mpeg | Duration: 00:24:46

Amber, aka @WheezyNurse, stops by the Clara studios to chat with Lilly about bettering the patient experience and advocating for better nurse-patient relationships to make treatment better for all.

 Episode Three - "I haven't looked at my steps yet...but I've taken quite a few!" | File Type: audio/mpeg | Duration: 00:20:29

Lilly meets up with Brooke Abbott (@CrzyCreoleMommy), live at the first-ever Crohn's and Colitis Congress in Las Vegas! Brooke is a leader in the intersection of IBD and parenthood. From becoming a mother at 26 and having her colon removed at 28, Brooke has traveled quite a long way in her journey as a single mother, advocate, and patient. In this interview amidst the hustle and bustle of glitzy, glamorous Vegas, Lilly and Brooke go deep into all that Brooke has learned about her patient power over the years.

 Episode Two - Kelby and the Worst Roommate Ever | File Type: audio/mpeg | Duration: 00:22:17

Kelby is a patient advocate living with ankylosing spondylitis and Hashimoto's. Kelby spreads her passion of health and wellness through her blog and through her position as National Volunteer Committee Chair at the Walk to Cure Arthritis. In this laugh-filled and candid interview, Kelby and our host, Lilly, get into the ins and outs of living with these chronic conditions...and how they are almost like roommates.

 Amanda Lustig: "She has Crohn's disease, and she's pretty rad!" | File Type: audio/mpeg | Duration: 00:26:17

Lilly sits down with Amanda Lustig, a fabulous patient advocate living with Crohn's disease. Amanda is vice president of Crohn's and Colitis Foundation of New England's Young Professionals...and, yup, she's pretty rad!


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