Kessler Foundation Podcasts

My Life as A Research Assistant at Kessler Foundation Series: Andrea Trotta Gagliano On A First Look at TBI Research Read the transcript - https://kesslerfoundation.org/sites/default/files/2020-08/Andrea%20Trotta%20Gagliano%20on%20A%20First%20Look%20at%20Research-Transcript.pdf *** Originally recorded on March 31st, 2016, updated July 13, 2020 *** *** Andrea is currently a Research Coordinator in the Center for Traumatic Brain Injury Research at Kessler Foundation (https://kesslerfoundation.org/research/center-traumatic-brain-injury)*** Welcome to our newest podcast series, “My Life As A Research Assistant”. This series is brought to you by Kessler Foundation, where we are changing the lives of people with disabilities. Research assistants are on the front lines of our research studies collecting data, conducting interviews, testing subjects, and are the face of Kessler Foundation to our research study participants. In 2020, Kessler Foundation was ranked among one of the Best Nonprofits to Work For and Best Places to Work in New Jersey (https://kesslerfoundation.org/press-release/kessler-foundation-ranks-among-best-nonprofits-work-and-best-places-work-new-jersey)! Throughout this series, we’ll meet up with research assistants from our centers for mobility, spinal cord injury, stroke, traumatic brain injury, and neuroscience and neuropsychology who have been with the Foundation for over a year, and some who are now senior research assistants, nurses, medical students, graduate students, and post docs, and those who applied their experience to other professions. In this first episode, I met up with Andrea Trotta Galliano, (Ms. Gagliano was a research assistant when this podcast was recorded) is a Senior Research Coordinator in the Center for Traumatic Brain Injury Research. She has worked at the Foundation since 2012 and is also a Licensed Professional Counselor on several current TBI protocols. Her main responsibilities are inpatient recruitment for two national projects, along with data collection & management, and administration of clinical assessments and interventions. She also volunteer as a facilitator for a Brain Injury Alliance of New Jersey (BIANJ) sponsored brain injury support group where she provides psychological and psychoeducational support for survivors of brain injury and their caregivers. Read more about Andrea at https://kesslerfoundation.org/aboutus/Andrea%20Gagliano For more about the Host: Joan Banks-Smith, go to https://kesslerfoundation.org/aboutus/Joan%20Banks-Smith Join a research study at https://kesslerfoundation.org/join-our-research-studies Interested in working Kessler Foundation? Check out our career opportunities at http://kesslerfoundation.org/careers-kessler-foundation Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Thursday, March 31st, 2016 at 300 Executive Drive, West orange, NJ and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Fashion meets Accessibility, is a Kessler Foundation podcast that takes you into the fashion industry, we’ll discuss inclusion, accessibility and adaptive clothing for people with disabilities. Read the transcript at https://kesslerfoundation.org/sites/default/files/2020-09/Shifting%20the%20culture%20in%20Fashion_creating%20adaptive%20clothing%20for%20people%20with%20disabilities-part2-TRANSCRIPT.pdf In this podcast series, we’ll chat with fashion designers, models, everyday people, and caregivers who are making a fashion revolution come to life. The industry predicts that adaptable fashion will earn up to $400 billion dollars by 2026. In this first of a two part series, "Shifting the culture in Fashion: creating adaptive clothing for people with disabilities" we met up with Mindy Scheier, the founder and CEO of Runway of Dreams. Mindy works with mainstream brands like Tommy Hilfiger and Zappos, to make adaptive modifications to their existing clothing lines for people with disabilities. Her journey began when her son Oliver, who has a rare form of Muscular Dystrophy, wanted to wear jeans to school, but couldn’t manage the buttons or zippers. Mindy realized that millions of people also struggled to access fashionable clothing that met their needs. She envisioned a world where clothing was available with modifications that would make them accessible for people with disabilities. After spending 20 years in the fashion industry, Mindy, decided to combine her experience and her passion to address this unmet need by founding the Runway of Dreams Foundation. Listen in as Nicky Miller, our social media specialist interviews Mindy about the start of her journey into the world of adaptive fashion. Be sure and listen to part one of this series as Mindy talks more about her journey into the world of adaptive fashion at https://soundcloud.com/kesslerfoundation/fashion-and-accessibility-mindy-scheier-part1 Mindy came to visit us in Spring 2020, Check out the blog kesslerfoundation.org/info/fashion-a…e-disabilities Read more about Mindy and the Run of Dreams Foundation at www.runwayofdreams.org and Nicky Miller at kesslerfoundation.org/aboutus/nicki%20miller Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. For more information about Kessler Foundation, go to kesslerfoundation.org. Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on, March 5, 2020 at 120 Eagle Rock Ave, East Hanover, NJ and was edited and produced by Joan Banks-Smith (kesslerfoundation.org/aboutus/Joan%20Banks-Smith), Creative Producer for Kessler Foundation.

Fashion meets Accessibility, is a Kessler Foundation podcast that takes you into the fashion industry, we’ll discuss inclusion, accessibility and adaptive clothing for people with disabilities. Read the transcript at https://kesslerfoundation.org/sites/default/files/2020-09/Shifting%20the%20culture%20in%20Fashion_creating%20adaptive%20clothing%20for%20people%20with%20disabilities-part1.pdf   In this podcast series, we’ll chat with fashion designers, models, everyday people, and caregivers who are making a fashion revolution come to life. The industry predicts that adaptable fashion will earn up to $400 billion dollars by 2026.    In this first of a two part series, "Shifting the culture in Fashion: creating adaptive clothing for people with disabilities" we met up with Mindy Scheier, the founder and CEO of Runway of Dreams. Mindy works with mainstream brands like Tommy Hilfiger and Zappos, to make adaptive modifications to their existing clothing lines for people with disabilities. Her journey began when her son Oliver, who has a rare form of Muscular Dystrophy, wanted to wear jeans to school, but couldn’t manage the buttons or zippers. Mindy realized that millions of people also struggled to access fashionable clothing that met their needs. She envisioned a world where clothing was available with modifications that would make them accessible for people with disabilities. After spending 20 years in the fashion industry, Mindy, decided to combine her experience and her passion to address this unmet need by founding the Runway of Dreams Foundation.   Listen in as Nicky Miller, our social media specialist interviews Mindy about the start of her journey into the world of adaptive fashion. Be sure and listen to part two of this series as Mindy talks more about the business end of the world of adaptive fashion https://soundcloud.com/kesslerfoundation/shifting-the-culture-in-fashion-creating-adaptive-clothing-for-people-with-disabilities-part2 Mindy came to visit us in Spring 2020, Check out the blog https://kesslerfoundation.org/info/fashion-all-adaptive-clothing-people-disabilities Read more about Mindy and the Run of Dreams Foundation at https://www.runwayofdreams.org and Nicky Miller at https://kesslerfoundation.org/aboutus/nicki%20miller Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. For more information about Kessler Foundation, go to kesslerfoundation.org. Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on, March 5, 2020 at 120 Eagle Rock Ave, East Hanover, NJ and was edited and produced by Joan Banks-Smith (https://kesslerfoundation.org/aboutus/Joan%20Banks-Smith), Creative Producer for Kessler Foundation.

Chatting with Kessler Foundation-affiliated honoree at the Brain Injury Alliance of New Jersey (BIANJ) Virtual Gala: Jane and Joe Concato Transcript: https://kesslerfoundation.org/sites/default/files/2020-08/Volunteering-has-given-us-both-a-purpose_2020-bianj-honoree-jane-and-joe-concato-TRANSCRIPT.pdf While the world has been reeling from the COVID-19 pandemic, there was a little bit of levity and light for the brain injury community in New Jersey on March 26th. The Brain Injury Alliance of NJ (BIANJ) had its first-ever annual gala in a virtual format via Facebook and YouTube, complete with speeches, awards, and music. At Kessler Foundation, we were exceptionally proud that one of this year's awards went to individuals closely associated with our organization. The Volunteer Service Champion designation went to our longtime research participants and advisory board members Jane & Joe Concato in honor of their service to the brain injury community in North Jersey. Dr. Nancy Chiaravalloti, Director of the Center for TBI Research and Neuropsychology & Neuroscience Research, was designated this year's Research Innovation Champion for her tireless efforts in meaningful brain injury research. Listen to the podcast at https://soundcloud.com/kesslerfoundation/tireless-efforts-in-meaningful-brain-injury-research-2020-bianj-honoree-dr-nancy-chiaravalloti In this podcast, Dr. Erica Weber interviews Jane and Joe and finds out how they got involved in this work. On behalf of Kessler Foundation, a heartfelt congratulations to Jane and Joe! 2020 Brain Injury Alliance of New Jersey Virtual Gala Video links: Jane and Joe Volunteer Service Champion Award Acceptance video - https://www.youtube.com/watch?v=aCZlIcG8hjM Jane and Joe Concato: Volunteer Service Champions - https://www.youtube.com/watch?v=8QjfPpiFTLM BIANJ 2020 Gala bio - https://bianj.org/wp-content/uploads/2019/12/Concato-Bio.pdf Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. For more information about Kessler Foundation, go to KesslerFoundation.org Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 29th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation. About Jane and Joe: Westwood couple finds new meaning in life after tragedy northjersey.com/story/life/community/2016/08/25/westwood-couple-finds-new-meaning-in-life-after-tragedy/92957142 Traumatic Brain Injury Changed the Life of One Local Couple https://patch.com/new-jersey/westwood-hillsdale/traumatic-brain-injury-changed-the-life-of-one-local-couple Check out a list of websites and resources mentioned in this podcast at https://kesslerfoundation.org/sites/default/files/2020-07/Volunteering-Has-Given-Us-Both-a-Purpose_2020-BIANJ-honoree-Jane-and-Joe-Concato-Podcast-links%20.pdf

Chatting with Kessler Foundation-affiliated honoree at the BIANJ Virtual Gala: Dr. Nancy Chiaravalloti Transcript: https://kesslerfoundation.org/sites/default/files/2020-08/tireless-efforts-in-meaningful-brain-injury-research-2020-bianj-honoree-dr-nancy-chiaravalloti.pdf While the world has been reeling from the COVID-19 pandemic, there was a little bit of levity and light for the brain injury community in New Jersey on March 26th. The Brain Injury Alliance of NJ (BIANJ) had its first-ever annual gala in a virtual format via Facebook and YouTube, complete with speeches, awards, and music. At Kessler Foundation, we were exceptionally proud that two of this year's awards went to individuals closely associated with our organization. Dr. Nancy Chiaravalloti, Director of the Center for TBI Research and Neuropsychology & Neuroscience Research, was designated this year's Research Innovation Champion for her tireless efforts in meaningful brain injury research. The second award, Volunteer Service Champion went to our longtime research participants and advisory board members Jane & Joe Concato in honor of their service to the brain injury community in North Jersey. Listen to their podcast at https://soundcloud.com/kesslerfoundation/volunteering-has-given-us-both-a-purpose-2020-bianj-honoree-jane-and-joe-concato/s-gu22wRx7pdF. In this podcast, Dr. Erica Weber interviews Dr. Chiaravalloti and finds out how she got involved in this work. On behalf of Kessler Foundation, a heartfelt congratulations to Nancy! 2020 Brain Injury Alliance of New Jersey Virtual Gala Video links Dr. Nancy Chiaravalloti: Research Innovation Champion video - https://www.youtube.com/watch?v=2KgWmp_tpRY Dr. Nancy Chiaravalloti Acceptance video - https://www.youtube.com/watch?v=-LYvIN_Rz-g&list=PLnpbrI3UT2F6JXeU5-z5NgApLtN7FCzhB&index=5 Online bios: Dr. Nancy Chiaravalloti - https://kesslerfoundation.org/aboutus/Nancy%20Chiaravalloti Dr. Erica Weber - https://kesslerfoundation.org/aboutus/Erica%20Weber Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on Tuesday, April 28th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation. Resources/Studies ==================== Join a research study at Kessler Foundation - https://kesslerfoundation.org/research/studies/traumatic-brain-injury Consumer Resource - https://kesslerfoundation.org/researchcenter-traumatic-brain-injury-research/consumer-resources-traumatic-brain-injury Northern New Jersey Traumatic Brain Injury System - https://kesslerfoundation.org/researchcenter/tbi/modelsystems TBI News and Views Newsletter - https://kesslerfoundation.org/media/publications#tbinewsletter

Voices of the ADA Generation: The College-to-Work Story of Victoria Queyquep Transcript: https://kesslerfoundation.org/sites/default/files/2020-08/The-College-to-Work%20Story-of-a-Young-Woman-with-a-Disability%E2%80%93Vicky%20Queyquep-TRANSCRIPT.pdf In conjunction with the launch of our newest survey, the 2020 Kessler Foundation National Employment and Disability Survey: Recent College Graduates (https://kesslerfoundation.org/researchcenter-employment-and-disability-researchemployment-and-disability-survey-2020/2020-survey), Nicky Miller, Social Media Specialist at Kessler Foundation, chatted with Victoria Queyquep, Kessler’s donor engagement specialist on the Development team, and a member of the first generation to come of age after the Americans with Disabilities Act became law in 1990. We talked about her education, her aspirations, and her career path, and I asked her to reflect on her journey as a person with a disability seeking work after college. Our survey dispelled many long held myths about people with disabilities and higher education. Young people and their families were often told that college would be a waste of time, they would be unable to perform as well as their peers, and a college education would not increase their likelihood of gainful employment. All of these beliefs were upended by the survey, which showed that college graduates with and without disabilities are employed at the same rates – 90%. The survey also looked at how key experiences during college influenced the success of recent graduates in the workplace. Taking advantage of career advising services, doing an internship, and having paid work, were all positively associated with employment after college for graduates with and without disabilities. During our podcast, I learned how Vicky Queyquep’s college-to-work experience compared with the members of the ADA generation who participated in the survey. Read Vicky’s bio at https://kesslerfoundation.org/about-us/Victoria%20Queyquep and blog post “Voices of the ADA Generation: The College-to-Work Story of Victoria Queyquep” (https://kesslerfoundation.org/info/voices-ada-generation-college-work-story-victoria-queyquep) Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. For more information about Kessler Foundation, go to KesslerFoundation.org Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on Monday, June 22nd, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition, Episode 9 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. In this episode, Carolann Murphy, PA, interviews Dr. Jeanne Zanca, senior research scientist in the Center for Spinal Cord Injury Research, and co-investigator for the Northern New Jersey Spinal Cord Injury Model Sysytem. Dr. Zanca also serves as associate editor for the Journal of Spinal Cord Medicine, and is a fellow of the American Congress of Rehabilitation Medicine (ACRM) and a member of the ACRM Board of Governors. Dr. Zanca describes the development of a web-based curriculum for training personal care assistants in the type of care needed by individuals with spinal cord injury. This project update is relevant to our recent experience with the COVID-19 pandemic, which has placed new emphasis on health care workers and on the advantages of online education. As director of this project, Dr. Zanca shares her perspective on how its utilization can improve quality of life, as well as the personal assistance received by people living with spinal cord injury. This project is a collaboration of Kessler Foundation and Shepherd Center. To learn more about our experts click on their bio links below: 

Dr. Jeanne Zanca - (kesslerfoundation.org/aboutus/Jeanne%20Zanca)
CarolAnn Murphy, PA - (kesslerfoundation.org/aboutus/Carolann%20Murphy) Read the transcript at https://kesslerfoundation.org/sites/default/files/2020-08/enabling-optimal-care-after-spinal-cord-injury_an-online-curriculum-for-personal-care-assistants-TRANSCRIPT.pdf Podcast Resources 
=================================
 Professional Healthcare Institute - phinational.org How to Successfully Hire and Manage a Personal Care Assistant for People with Spinal Cord Injury - https://www.shepherd.org/resources/ebooks United Spinal Association Caregiver Resources - https://askus-resource-center.unitedspinal.org/index.php?pg=kb.book&id=9 Paralysis Resource Center Personal Care Assistance Blog Series - https://www.christopherreeve.org/blog/daily-dose/selecting-and-hiring-a-pca Managing Personal Care Assistance: A Consumer Guide by the Paralyzed Veterans of America - https://pva.org/research-resources/publications/advocacy-and-accessibility ================================= Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 The work described in this podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) via grant # 90IF0115. The Northern New Jersey Spinal Cord Injury System is funded by NIDILRR grant # 90SI5026. NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this podcast do not necessarily represent the policy of NIDILRR, ACL, or HHS, and you should not assume endorsement by the Federal Government. Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 16th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Earlier this year, Catarina Guimaraes, an athlete from one of our grantees, the Navigators, an adaptive sports club from Bayonne, NJ shared her experiences as a para athlete with our Center for Neuropsychology and Neuroscience and Traumatic Brain Injury Research team. Angela, Smith, Senior Research Coordinator (https://kesslerfoundation.org/aboutus/Angela%20Smith) at the foundation introduced and welcomed Catarina at the opening of this podcast. Catarina was born in 2004 with Cerebral Palsy. Cerebral Palsy has a significant impact on Catarina’s daily life such as very tight muscles and joints, delayed motor operation, lack of coordinated muscle movement and sensory abnormalities. She is a model student of the Cranford School District. Along with good grades, Catarina Participates in DECA (Business Society Club), Orchestra (Violin), Acapella and High School Able Bodied Sports Clubs like Soccer and Track/Field. When Catarina is not training, stretching or studying, she is an avid reader and as of 2020 has written and published 2 books her first books. Read the podcast transcript at https://kesslerfoundation.org/sites/default/files/2020-06/Obstacles-are-Made-to-be-Conquered-Adaptive-Sports-Athlete-Catarina-Guimaraes.pdf Learn more about Catarina: Athlete Profile (PDF) - http://kesslerfoundation.org/2020-06/Catarina-Guimaraes2020 Personnal Website - https://catarina-guimaraes.com/ Para Athlete website - https://www.teamusa.org/para-track-and-field/athletes/Catarina-Guimaraes North Jersey Navigator Adaptive Sports Club - https://www.facebook.com/navigatorsadaptivesportsclub Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation at https://soundcloud.com/kesslerfoundation. Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Tuesday, January 28th, 2020 at the Kessler Foundation conference Center, 102 Eagle Rock Ave, East Hanover, NJ and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition, Episode 8 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. The novel coronavirus pandemic has shed new light on an old problem: poorer health outcomes in vulnerable and diverse communities, including the disability community. In this podcast, we chat with clinical psychologist Dr. Denise Fyffe and social epidemiologist Dr. Amanda Botticello about this phenomenon and get their thoughts on how to best tackle the issues of health disparities from COVID-19 and what policies might help us avoid this pattern in the future. Read the podcast transcription at https://kesslerfoundation.org/sites/default/files/2020-05/Health-disparities-across-populations-COVID-19s-effects-on-the-disability-community_1.pdf To learn more about our experts click on their bio links below: 
Dr. Amanda Botticello (https://kesslerfoundation.org/aboutus/Amanda%20Botticello) 
Dr. Denise Fyffe (https://kesslerfoundation.org/aboutus/Denise%20Fyffe) 
Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Podcast Resource links….
 Mental Health 
==================== NJ Mental Health emotional support during COVID-19 (www.njmentalhealthcares.org/)
866-202-HELP (4357) 7 days a week, 8am to 8pm (EST) Upcoming Brain Injury Alliance of New Jersey (BIANJ Virtual Support Groups - bianj.org/support-groups/ Ask an MS Navigator - https://www.nationalmssociety.org/Resources-Support/Find-Support/Ask-an-MS-Navigator Headspace.com (Mindfulness for your everyday life) - https://www.headspace.com Mindful Meditation 
==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present -  www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn -  www.youtube.com/watch?v=hcKGv06U_KU Headspace - www.headspace.com/meditation/10-minute-meditation National Organization ==================== National Multiple Sclerosis Society - https://www.nationalmssociety.org Brain Injury Alliance of New Jersey (BIANJ) - https://bianj.org Paralyzed Veterans of America (PVA) - https://pva.org COVID-19 Response from the Neilsen Foundation - https://chnfoundation.org/on-our-minds Wounded Warrior Project - https://newsroom.woundedwarriorproject.org/2020-04-09-WWP-Commits-10-Million-to-Help-Wounded-Veterans-During-Pandemic Centers for Disease Control and Prevention - https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html?CDC_AA_refVal=https%3A%2F%2Fwww.cdc.gov%2Fcoronavirus%2F2019-ncov%2Fprepare%2Fmanaging-stress-anxiety.html  COVID-19 Consumer Warnings and Safety Tips - www.fcc.gov/covid-scams Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Thursday, April 30th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition, Episode 7 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. While the COVID-19 pandemic has disrupted daily life for the general population in the last few months, individuals living with multiple sclerosis (MS) know a thing or two about coping with unforeseen challenges. In this podcast, we speak with two of our Kessler Foundation employees who also have MS, Carla Basante and Michaele Clayborne-Crosby, about their experience during the novel coronavirus pandemic, and how they are managing to maintain their health and well-being. Read the podcast transcription at https://kesslerfoundation.org/sites/default/files/2020-05/Coping%20with%20MS%20during%20the%20COVID-19%20Pandemic_0.pdf To learn more about our host and guests click on their bio links below: 
Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Carla Basante (https://kesslerfoundation.org/about-us/foundation-staff/carla-basante) Michaele Clayborne-Crosby (https://kesslerfoundation.org/about-us/foundation-staff/michaele-clayborne-crosby) Kessler Foundation current tele-studies (https://kesslerfoundation.org/covid-19#participate) Mental Health 
==================== NJ Mental Health emotional support during COVID-19 (www.njmentalhealthcares.org/)
866-202-HELP (4357) 7 days a week, 8am to 8pm (EST) Headspace.com (Mindfulness for your everyday life) - https://www.headspace.com Mindful Meditation
 ==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present -  www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn -  www.youtube.com/watch?v=hcKGv06U_KU Headspace - www.headspace.com/meditation/10-minute-meditation National Organization ==================== National Multiple Sclerosis Society - https://www.nationalmssociety.org Centers for Disease Control and Prevention - https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html?CDC_AA_refVal=https%3A%2F%2Fwww.cdc.gov%2Fcoronavirus%2F2019-ncov%2Fprepare%2Fmanaging-stress-anxiety.html Centers for Disease Control and Prevention - www.cdc.gov/coronavirus/2019-nc…stress-anxiety.html COVID-19 Consumer Warnings and Safety Tips - www.fcc.gov/covid-scams Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 29th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition, Episode 6 Sleep is a critical function that contributes significantly to our physical and emotional health as well as our overall quality of life. Many individuals with disabilities (for instance, those recovering from traumatic brain injury) may have increased problems with sleep. Consequences of the COVID-19 pandemic and its effect on society can interfere with sleep in a variety of ways, making existing issues more difficult for people with disabilities and/or bringing about new challenges. Listen as Dr. Erica Weber interviews neuropsychologist Dr. Anthony Lequerica, senior research scientist at Kessler Foundation, and an expert in sleep disturbances after brain injury, about the importance of quality sleep and how to maintain proper sleep hygiene during this stressful time. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-05/Optimizing-healthy-sleep-habits-during-the-COVID-19-pandemic-TRANSCRIPTION.pdf   To learn more about our experts click on their bio links below: Dr. Anthony Lequerica (kesslerfoundation.org/aboutus/Anthony%20Lequerica) Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Join a study - https://kesslerfoundation.org/research/studies/motor-learning-and-sleep-tbi Podcast Resources ===================== General information about sleep hygiene:  https://www.sleepfoundation.org/articles/sleep-hygiene For Cognitive Behavioral Therapy for Insomnia (CBT-I):  Provider search tab at https://www.behavioralsleep.org/ To find an accredited Sleep Disorders Clinic:  http://sleepeducation.org/find-a-facility Traumatic Brain Injury resources from the Model Systems Knowledge Translation Center:  https://msktc.org/tbi/factsheets/sleep-and-traumatic-brain-injury https://msktc.org/lib/docs/Info_Comics/MSKTC_SleepComic_508.pdf Mindful Meditation 
==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present -  www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn -  www.youtube.com/watch?v=hcKGv06U_KU Headspace - www.headspace.com/meditation/10-minute-meditation ============================================================ Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 15th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition, Episode 5 Caregiving for a loved one who has experienced a traumatic brain injury (TBI) can be stressful in the best of times, let alone during a pandemic. In this podcast, Dr. Erica Weber hosts a conversation about TBI caregiving in the time of COVID-19 with director Nancy Chiaravalloti, PhD, and senior research scientist Denise Krch, PhD, of the Center for Traumatic Brain Injury Research at Kessler Foundation. These experts discuss challenges often faced by caregivers of persons with TBI and how symptoms may be exacerbated during sheltering in place, along with recommendations to reduce stress in the household while remaining vigilant, safe, and healthy. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-04/caregiving-for-persons-with-traumatic-brain-injury-while-sheltering-in-place-for-covid-19-TRANSCRIPTION.pdf To learn more about our experts click on their bio links below:
 Dr. Nancy Chiaravalloti (kesslerfoundation.org/aboutus/Nancy%20Chiaravalloti) Dr. Denise Krch (https://kesslerfoundation.org/aboutus/Denise%20Krch) Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Podcast Resource links…. ============================== Upcoming Brain Injury Alliance of New Jersey (BIANJ Virtual Support Groups - https://bianj.org/support-groups/ Caregiver newsletter with some COVID-19 info:  https://mailchi.mp/caregiver.com/leading-love?e=c30a6d44c8 Join a TBI-caregiver tele-study through Kessler Foundation (PI: Denise Krch, PhD): "Comparison of Two Group Wellness Interventions in Partner Caregivers of Individuals with TBI" The purpose of this research study is to compare the effect of two different types of group wellness interventions for partner caregivers of individuals with TBI.  https://kesslerfoundation.org/research/studies/comparison-two-group-wellness-interventions-partner-caregivers-individuals-tbi COVID-19 Consumer Warnings and Safety Tips - https://www.fcc.gov/covid-scams Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 8th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition - Episode 4 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. Moving research forward while staying home: The past, present, and future of rehabilitation research Carolann Murphy, senior staff writer at Kessler Foundation and host of this podcast, interviews three Foundation scientists: Dr. Olga Boukrina, research scientist in the Center for Stroke Rehabilitation Research, Dr. Ekaterina Dobryakova, research scientist in the Center for Traumatic Brain Injury Research, and Dr. Nuri Erkut Kucukboyaci, associate research scientist, also in the Center for Traumatic Brain Injury Research. Together they will explore the changing face of rehabilitation research during the COVID-19 pandemic. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-04/moving-research-forward-while-staying-home-TRANSCRIPTION.pdf Learn more about our scientists: CarolAnn Murphy, PA https://kesslerfoundation.org/aboutus/Carolann%20Murphy Senior Staff Writer Olga Boukrina, PhD https://kesslerfoundation.org/aboutus/Olga%20Boukrina Research Scientist, Center for Stroke Rehabilitation Research Ekaterina Dobryakova, PhD https://kesslerfoundation.org/aboutus/Ekaterina%20Dobryakova Research Scientist, Center for Traumatic Brain Injury Nuri Erkut Kucukboyaci, PhD https://kesslerfoundation.org/aboutus/Erkut%20Kucukboyaci Associate Research Scientist, Center for Traumatic Brain Injury Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts that are listed on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Thursday, April 9th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition - Episode 3 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. Social distancing is becoming the new norm in the days of COVID-19. While quarantining is proving to be challenging for many Americans, there may be additional social struggles faced by individuals with multiple sclerosis(MS) and traumatic brain injury (TBI). In this podcast, we discuss with Dr. Genova how problems with social cognition (referring to the brain's ability to interpret and react to interactions with others) may be exacerbated during quarantine, and how to reduce the impact of these difficulties on relationships in the household. Dr. Weber also provides insight into how individuals with MS and TBI may be feeling socially isolated right now, and how to find social outlets and resources to improve mental health in this stressful time. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-04/social-distancing-with-MS-or-a-TBI_Difficulties-with-being-too-close-and-too-far-TRANSCRIPTION.pdf To learn more about our experts click on their bio links below: Dr. Helen Genova (https://kesslerfoundation.org/aboutus/Helen%20Genova) Dr. Erica Weber (https://kesslerfoundation.org/aboutus/Erica%20Weber) Nicky Miller (https://kesslerfoundation.org/aboutus/nicki%20miller) Podcast Resource links…. National Organization ==================== National Multiple Sclerosis Society - https://www.nationalmssociety.org Brain Injury Alliance of New Jersey (BIANJ) - https://bianj.org Centers for Disease Control and Prevention - https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html?CDC_AA_refVal=https%3A%2F%2Fwww.cdc.gov%2Fcoronavirus%2F2019-ncov%2Fprepare%2Fmanaging-stress-anxiety.html  Mental Health ==================== New Jersey Mental Health emotional support during COVID 19 - https://www.njmentalhealthcares.org 866-202-HELP (4357), 7 days a week, 8am to 8pm (EST) Headspace.com (Mindfulness for your everyday life) - https://www.headspace.com/ Mindful Meditation ==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present -  https://www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - https://www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn -  https://www.youtube.com/watch?v=hcKGv06U_KU Headspace - https://www.headspace.com/meditation/10-minute-meditation ============================================================ Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 1st, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 Edition - Episode 2 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. In this episode, CarolAnn Murphy, senior staff writer interviewed spinal cord injury expert Dr. Trevor Dyson-Hudson, both from Kessler Foundation on COVID-19 and SCI: Minimizing Risks for Complications. Read the podcast transcript at https://kesslerfoundation.org/sites/default/files/2020-04/COVID-19-and-spinal-cord%20Injury_minimizing-risks-for-complications-TRANSCRIPTION.pdf 
For more information about our experts and resources mentioned in the podcast, please check out the program notes. Listen in as CarolAnn Murphy and Dr. Trevor Dyson-Hudson discuss practical techniques and devices that people with spinal cord injury can use to improve their cough. To learn more about our experts click on their bio links below: Trevor Dyson-Hudson, MD (https://kesslerfoundation.org/aboutus/Trevor%20Dyson-Hudson) Director, Center for Spinal Cord Injury Research Co-Director, Northern New Jersey Spinal Cord Injury System Kessler Foundation Carolann Murphy, PA (https://kesslerfoundation.org/aboutus/Carolann%20Murphy) Senior Staff Writer Kessler Foundation Podcast Resource links…. Blog Post: https://kesslerfoundation.org/info/covid-19-and-spinal-cord-injury-minimizing-risks-complications Taking a Deeper Breath: Air Stacking (Duration: 3 min 43 sec - https://youtu.be/NpYz-I9H94U)“Frog Breathing” or “Glossopharyngeal Breathing.” (Duration: 1 min 47 sec - https://youtu.be/-CLRGatzqdA) 
Increasing Cough Force: Manually Assisted Coughing (Duration: 5 min 52 sec - https://youtu.be/jHKw-je1Z9c) 

Increasing Cough Force: Mechanically Assisted Coughing [Mechanical Insufflation/Exsufflation] (Duration: 4 min 7 sec - https://youtu.be/M1O9P2AevdY) 
Complete Kessler video on Prevention of Pneumonia and Atelectasis after spinal cord injury go to https://www.youtube.com/watch?v=T-jr5daLyLw Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 3, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.