Summary: Stephanie, mom to Adeline, shares her experiences in the NICU and describes Addie’s difficulty with digestion. A long road of unknowns eventually led to a diagnosis of functional short bowel syndrome. <br> <br> Stephanie describes how having a child with an "invisible disease" can be a blessing and a curse, how she felt relief when they received Addie’s diagnosis, and how she handles tough to answer questions from well-meaning friends and families.
