Summary: Mandy, a mom, talks honestly and candidly with us about what it’s like to live with a child who has a rare genetic condition. She discusses the current emotions that paralleled an experience she had in high school when she lost her mom to cancer. Mandy shares her concerns and fears associated with her son's future and having a a diagnosis she had never of before, and she also talks about some of his favorite things: trucks, books, and a Bob Marley song.
