Summary: We kick off the Penn Health-X Podcast with Dr. Fajgenbaum! Map 4:30 – football at Georgetown, his mother’s illness, and starting AMF 8:45 – getting to Penn Med and being diagnosed with Castleman Disease 13:40 – relapsing, and not being content with the state of research 17:20 – mentors, the orphan disease center, and starting the CDCN with an email 21:00 – getting the MBA and learning to manage a group of researchers 23:30 – learning to negotiate 24:50 – how biomedical research funding needs to change 31:00 – using the CDCN model for other orphan diseases 34:00 – thoughts on high drug prices, right-to-try legislation, and FDA regulation, and off-label use 39:55 – being compared to a Nobel Prize winner, and planning for another potential relapse 43:45 – final thoughts Links: LinkedIn Profile https://www.linkedin.com/in/davidfajgenbaum/ NYTimes Article: https://www.nytimes.com/2017/02/04/business/his-doctors-were-stumped-then-he-took-over.html Actively Moving Forward (AMF): https://healgrief.org/actively-moving-forward/ CDCN Website: http://www.cdcn.org/ Getting More by Stuart Diamond https://www.amazon.com/Getting-More-Negotiate-Succeed-Work/dp/0307716902 The Castle Man Image http://files.www.cdcn.org/3590_SketchWarrior-process-s312x341.jpg
