Summary: <p><strong>Living without a diagnosis is hard. Being a mom of two undiagnosed children is perhaps even harder. In this episode, we interview Amanda Upton, who has two medically complex daughters who continue to live without a name for their condition. Throughout their journey, the Upton family has learned to roll with the punches and make the best out of every good day. Listen to learn what it is like to manage medical mysteries, dispel myths of living with disabilities, and what healthcare providers can do to make families like Amanda’s feel heard and supported.</strong></p> <p><strong>Amanda Upton is a midwestern mom and a licensed teacher for children from birth to age eight in both regular and special education. After several years in the classroom, her teaching license is now being used at home to homeschool her daughters. She loves all things Disney and experimenting in the kitchen.</strong></p> <p><strong>Episode produced by: Rasa Valiauga</strong></p> <p><strong>Episode recording date: 2/23/21</strong></p> <p><a href="http://www.medicuspodcast.com/"><u><strong>www.medicuspodcast.com</strong></u></a><strong> | </strong><a href="mailto:medicuspodcast@gmail.com"><u><strong>medicuspodcast@gmail.com</strong></u></a><strong> | Donate: </strong><a href="http://bit.ly/MedicusDonate"><u><strong>http://bit.ly/MedicusDonate</strong></u></a></p> <p><strong>Wishlist for Ronald McDonald House (purchases directly ship to RMH): </strong><a href="https://www.amazon.com/hz/wishlist/dl/invite/80FxSHO?ref_=wl_share"><u><strong>https://www.amazon.com/hz/wishlist/dl/invite/80FxSHO?ref_=wl_share</strong></u></a></p> <p><strong>Published articles:</strong></p> <p><a href="https://complexchild.org/articles/2019-articles/september/accessible-world/"><u><strong>https://complexchild.org/articles/2019-articles/september/accessible-world/</strong></u></a></p> <p><a href="https://complexchild.org/articles/2018-articles/july/just-go/"><u><strong>https://complexchild.org/articles/2018-articles/july/just-go/</strong></u></a></p> <p><a href="https://complexchild.org/articles/2017-articles/april/fixing-healthcare/"><u><strong>https://complexchild.org/articles/2017-articles/april/fixing-healthcare/</strong></u></a></p> <p><a href="https://complexchild.org/articles/2017-articles/february/lessons-feeding-tube/"><u><strong>https://complexchild.org/articles/2017-articles/february/lessons-feeding-tube/</strong></u></a></p> <p><a href="https://complexchild.org/articles/2017-articles/february/taping-gj-tube/"><u><strong>https://complexchild.org/articles/2017-articles/february/taping-gj-tube/</strong></u></a></p> <p><a href="https://complexchild.org/articles/2017-articles/november/emergency-one-page/"><u><strong>https://complexchild.org/articles/2017-articles/november/emergency-one-page/</strong></u></a></p> <p><a href="https://littlelobbyists.org/blog/2020/11/5/before-the-aca-my-health-insurance-was-junk-by-amanda-upton"><u><strong>https://littlelobbyists.org/blog/2020/11/5/before-the-aca-my-health-insurance-was-junk-by-amanda-upton</strong></u></a></p> --- Send in a voice message: https://podcasters.spotify.com/pod/show/medicus/message
