If We Knew Then - Down Syndrome Podcast show

If We Knew Then - Down Syndrome Podcast

Summary: We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting. WEBSITE: https://ifweknewthen.com

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  • Artist: Stephen and Lori Saux
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Podcasts:

 49. Discussing Health and Inclusion with Pediatrician Dr. Mona Patel Gera | File Type: audio/mpeg | Duration: 01:18:19

An enlightening conversation with Dr. Mona Patel Gera to answer the questions parents of children with Down syndrome often have. Health Supervision Guidelines: https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Documents/Health_Care_Information_for_Families_of_Children_with_Down_Syndrome.pdf Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/25/49-discussing-health-and-inclusion-with-pediatrician-dr-mona-patel-gera/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 48. World Down Syndrome Day: The Path To Finding Our Celebration | File Type: audio/mpeg | Duration: 23:42

March 21st is World Down Syndrome Day and we discuss our personal journey to find our celebration and what it means to us. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/16/48-world-down-syndrome-day-the-path-to-finding-our-celebration/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 47. What Do We Do When Faced with Challenges and Negativity? An Interview with Karen Maezen Miller | File Type: audio/mpeg | Duration: 58:02

As parents, we all find ourselves dealing with confusing emotions and challenges from time to time. In this conversation, Zen Buddhist Priest Karen Maezen Miller, gives us some guidance to help us deal with the negative. Her books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1  Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/11/47-what-do-we-do-when-faced-with-challenges-and-negativity-an-interview-with-karen-maezen-miller/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 46. Coming Down The Mountain: Our Interview with Julie Anne Robinson | File Type: audio/mpeg | Duration: 35:40

Our conversation with Executive Producer and Director of ‘Bridgerton’, Julie Anne Robinson about the film ‘Coming Down The Mountain’ and the importance of inclusion in media. ‘Coming Down The Mountain’ on Prime Video: https://www.amazon.com/gp/video/detail/B082P67X6D/ref=atv_dp_share_cu_r  Frostig School: https://frostigschool.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/03/46-coming-down-the-mountain-our-interview-with-julie-anne-robinson/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 45. Speech Therapy with Kerri Wake of McRory Pediatrics | File Type: audio/mpeg | Duration: 01:10:30

Speech Pathologist, Kerri Wake, joins us to talk about communication, supportive tools parents can provide their children and the pathways to receiving speech therapy in the school setting. The McRory Pediatrics Website: https://www.mcrorypediatrics.com The Hanen Centre: http://www.hanen.org/Home.aspx Early Milestone List: https://speechhearing.columbian.gwu.edu/sites/g/files/zaxdzs1996/f/downloads/Milestonesguide.pdf Article on the benefits of AAC (speech generating devices): https://digitalcommons.unl.edu/cgi/viewcontent.cgi?article=1088&context=specedfacpub Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/25/45-speech-therapy-with-kerri-wake-of-mcrory-pediatrics/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 44. Looking Back At A Decade: Liam Turns 10 | File Type: audio/mpeg | Duration: 35:02

Stephen and Lori discuss the process of acceptance, the importance of communication and how to take time for yourself. Originally set for release a year ago, this episode celebrates Liam's 10th birthday and all the accomplishments and lessons learned over a wonderful decade. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/18/44-looking-back-at-a-decade-liam-turns-10/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 43. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 2 | File Type: audio/mpeg | Duration: 56:53

Occupational Therapist, Erin Stanford from McRory Pediatrics, visits us again for Part 2 of our OT discussion. This week we concentrate on behavior and what information parents should have to provide the best supports for their child. The McRory Pediatrics Website: https://www.mcrorypediatrics.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/08/43-occupational-therapy-erin-stanford-of-mcrory-pediatrics-part-2/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 42. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 1 | File Type: audio/mpeg | Duration: 58:11

Occupational Therapist at McRory Pediatrics, Erin Stanford, visits us to discuss at home and at school OT and helps us more clearly define the overlap of this therapy with Physical Therapy, Speech and Behavior Therapies. The McRory Pediatrics Website: https://www.mcrorypediatrics.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/04/42-occupational-therapy-erin-stanford-of-mcrory-pediatrics-part-1/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 41. Behavior: A Conversation with Kyle Davis of McRory Pediatrics | File Type: audio/mpeg | Duration: 01:23:53

Clinical Supervisor of Behavioral Services at McRoryPediatrics, Kyle Davis, visits us to discuss behavioral issues at home and at school. He also answers questions about when, how and why behaviors need to be addressed. The McRory Pediatrics Website: https://www.mcrorypediatrics.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/28/41-behavior-a-conversation-with-kyle-davis-of-mcrory-pediatrics/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 40. Discussing Supports with Nikki McRory of McRory Pediatrics | File Type: audio/mpeg | Duration: 43:02

Nikki McRory is the founder of McRory Pediatrics and in this episode Nikki gives us an insightful look at the different therapies that can help support your child in reaching their potential. The McRory Pediatrics Website: https://www.mcrorypediatrics.com The Hanen Centre: http://www.hanen.org/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/21/40-discussing-supports-with-nikki-mcrory-of-mcrory-pediatrics/2 Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 39. Our Interview with Steven Gustafson of 10,000 Maniacs | File Type: audio/mpeg | Duration: 58:23

Steven Gustafson is a founding member and bassist of the band 10,000 Maniacs. His sister, Cathy, had Down syndrome and we got a chance to discuss with him the impact she had on his life and the lives around her. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/15/39-our-interview-with-steven-gustafson-from-10000-maniacs/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 38. Moving Into A New Year One Moment At A Time | File Type: audio/mpeg | Duration: 24:44

In this episode Stephen and Lori discuss facing some of the difficulties of 2020 and how to move onto a fresh new year in a positive way. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/06/38-moving-into-a-new-year-one-moment-at-a-time/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 37. Our Community’s Response To Emmerdale’s Negative Storyline About Down Syndrome - Cristina Bowman | File Type: audio/mpeg | Duration: 40:16

In this episode we talk with Cristina Bowman of Diff-Ability about the British soap opera Emmerdale and it’s recent storyline which depicts a couple having an abortion because their baby has Down syndrome.  Petition against Emmerdale: https://www.change.org/p/itv-bin-emmerdale-s-prejudiced-storyline-about-down-s-syndrome?recruited_by_id=2f3349b0-f96d-11e5-80fd-c1f380c9ade0  DIff-Ability: https://www.diffability.co.uk  10% Videos: https://www.youtube.com/playlist?list=PLzOTYSYK2uvr96j-WowLKrxwDG-u9EsRx  Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/12/05/37-our-communitys-response-to-emmerdales-negative-storyline-about-down-syndrome-with-cristina-bowman/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 36. Giving Everyone Access to a Down Syndrome Specialty Clinic with DSC2U - Dr. Brian Skotko | File Type: audio/mpeg | Duration: 46:05

We are thankful to have Dr. Brian Skotko on today’s episode. Dr. Brian is the director of the Down Syndrome Program at Massachusetts General Hospital, a Board-certified medical geneticist and has dedicated his professional energies toward children with cognitive and developmental disabilities.  Today we talk about his new online clinic, DSC2U, the importance of inclusion and how we as a community can help the medical profession improve their delivery of a Down syndrome diagnosis. DSC2U: https://dsc2u.org  LUMIND IDSC FOUNDATION: www.lumindidsc.org  Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/25/36-giving-everyone-access-to-a-down-syndrome-specialty-clinic-with-dsc2u-dr-brian-skotko/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 35. Building a Realistic Approach to a Healthy Dental Routine - Dr. Jill Lasky | File Type: audio/mpeg | Duration: 26:06

In our second interview with Dr. Jill we discuss the methods and tools for parents who want to support their children in making good dental health habits. Lasky Pediatric Dental Group: https://www.laskypediatricdental.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/19/35-creating-a-realistic-approach-to-a-healthy-dental-routine-dr-jill-lasky/2/  Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

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