The Project Sebastian Podcast show

The Project Sebastian Podcast

Summary: Real talk about How our special needs families deal with the day to day challenges, struggles and some of the triumphs along the way. Support this podcast: https://anchor.fm/christopher-velona/support

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Podcasts:

 The Update | File Type: audio/x-m4a | Duration: 1170

Sebastians MRI...:( The rest of the years going forward. :) --- Support this podcast: https://anchor.fm/christopher-velona/support

 BDSRA Family Liaison Tracy Kirby | File Type: audio/x-m4a | Duration: 1412

Listen as Tracy Kirby discusses her role as one the Nations largest advocates in helping families affected by Batten disease find love, hope and support. --- Support this podcast: https://anchor.fm/christopher-velona/support

 Bill Bussey | File Type: audio/x-m4a | Duration: 2689

 A former police officer, Rodeo superstar, sheriff dispatcher and all-around guys guy, Shares his story. As we listen to him overcoming life's challenges through his own loss of sight, We are reminded that sometimes we just should not wait. Today's guest is almost blind and an advocate and independent contractor for a great company called eSight. Bill Bussey. To reach out to Bill for anything from eSight to coping with blindness call him at +1 (830) 388-0832 --- Support this podcast: https://anchor.fm/christopher-velona/support

 In my opinion | File Type: audio/x-m4a | Duration: 631

Why do we react so badly, Why do we run? Why are we crippled with fear?  Its ok ....It just is... --- Support this podcast: https://anchor.fm/christopher-velona/support

 Episode 12 | File Type: audio/x-m4a | Duration: 2563

Todays episode...The amazing Dr. Jill Weimer! Jill Weimer, Ph.D. Associate Scientist and Senior Director of Therapeutic Development   Sanford Research Dr. Jill Weimer is a developmental neuroscientist and oversees the management and continued development of the translational arm of Sanford Research in Sioux Falls, South Dakota. She started at Sanford Research in 2009 as an assistant scientist, and her research program focuses on the molecular mechanisms mediating development of the cerebral cortex and how disruption in these processes can lead to a whole host of neural pediatric disorders, including Batten’s disease and Neurofibromatosis Type 1. Dr. Weimer grew up in north central Missouri and moved to upstate New York where she received her bachelor’s degree and Ph.D. in neuroscience from the University of Rochester. She completed her postdoctoral training in the Neuroscience Research Center at the University of North Carolina in Chapel Hill with a focus on developmental neuroscience.  --- Support this podcast: https://anchor.fm/christopher-velona/support

 VERNON MAXXWELL | File Type: audio/x-m4a | Duration: 2301

ENTREPRENEUR, WORLD TRAVELLER, DJ, CELEBRITY PODCASTER, & LIFE ENTHUSIAST AND SPECIAL NEEDS ADVOCATE. Vernon tells his story about helping his family from across the country while discovering his true calling. --- Support this podcast: https://anchor.fm/christopher-velona/support

 Holiday message with Sebastian and Gage | File Type: audio/x-m4a | Duration: 493

Listen as my boys give all of us a holiday message! --- Support this podcast: https://anchor.fm/christopher-velona/support

 John Montazeri: Father, Advocate, Businessman | File Type: audio/x-m4a | Duration: 3433

Take a listen as this father of autistic child describes his life full of challenges, Depression, Marriage, Money, the current state of insurance with special needs ad how he is dealing with the loss of a very special person. --- Support this podcast: https://anchor.fm/christopher-velona/support

 Gage | File Type: audio/x-m4a | Duration: 3539

Today we talk to a sibling of a special needs kid. Gage, my son, goes deep into his relationship about his brother and talks candidly about the challenges of being a younger brother were anger and resentment played a part in the downfall of most of his relationships. Throughout his brothers challenges in life Gage found himself left out only to become one of sebastian‘s biggest supporters. --- Support this podcast: https://anchor.fm/christopher-velona/support

 Dena | File Type: audio/x-m4a | Duration: 2030

Dena bogrow •Listen as this special-needs mom tackles and 18-year-old suffering from several forms of autism. Attacking the day-to-day challenges of divorce, daily activities, home based business as well as finding the spiritual aspect to survive --- Support this podcast: https://anchor.fm/christopher-velona/support

 Vanessa severance | File Type: audio/x-m4a | Duration: 2870

Batten disease cln2 mom discusses the hardships of full-time care with full-time jobs --- Support this podcast: https://anchor.fm/christopher-velona/support

 Welcome | File Type: audio/x-m4a | Duration: 510

Getting to know your host, Christopher Velona --- Support this podcast: https://anchor.fm/christopher-velona/support

 Batten disease... | File Type: audio/x-m4a | Duration: 2126

Greg Lopez~We discuss the everyday challenges of an Autistic adult and a father of 5 who is relentless in helping others in the batten community --- Support this podcast: https://anchor.fm/christopher-velona/support

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