IBD Round Table Discussion ( Video ) Archives - The Crohn's Colitis Effect
Summary: The Crohn's Colitis Effect is a non-profit Inflammatory Bowel Disease advocacy group specializing in spreading awareness for IBD, Crohn's, and Colitis. Our monthly IBD Round Table Discussion brings some of the leading IBD Advocates together to talk about this invisible illness and what we can do to make life better. Regardless if you are a patient, caregiver, or just someone looking to educate themselves more about this gastrointestinal disease, there is something for everyone in these webcasts. Our mission is to make IBD a "household" name!
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- Artist: The Crohns Colitis Effect
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Podcasts:
Dr. Peter Higgins of the University of Michigan IBD Center is our special guest this month. Dr. Higgins talks to us about the latest IBD research that is going on.. New IBD drugs that have just come to market Ozanimod and Mongersen.. Can you have both Crohn’s Disease and Ulcerative Colitis? The 23andMe Study, The GEM Project… Plus much, much more! Host: Frank Garufi Jr. Panelist: Marisa Lauren Troy, Ryan Stevens, Sara Ringer Special Guest: Dr. Peter Higgins of The University of Michigan IBD Center Please subscribe to us here on YouTube!!!!! Website: http://cceffect.org Facebook: https://www.facebook.com/TheCrohnsColitisEffect Google+ : https://plus.google.com/+TheCrohnsColitisEffect Twitter: https://twitter.com/crohnseffect Pinterest: http://www.pinterest.com/cceffect LinkedIn – https://www.linkedin.com/company/the-crohn%27s-colitis-effect
Meet Eric Polsinelli of VeganOstomy.ca – An #IBD Advocate, Crohn’s Disease patient, Ostomate, and someone who truly believes in living a vegan lifestyle Eric gives us a look into his life before being diagnosed with Crohn’s Disease, what lead up to needing a permanent ileostomy, and his decision to start advocating for Crohn’s and Ulcerative Colitis, Eric also gives us insight into the product reviews he does for ostomy appliances and apparel plus his advice for other ostomate’s that might find it hard trying / experimenting with new equipment. Don’t let the name “Vegan” in his title turn you away! The information and awareness he shares with us in this interview far exceeds any diet lifestyle he subscribes too! Links for Eric: Website: http://www.veganostomy.ca YouTube: https://www.youtube.com/user/Veganostomy Google+: https://plus.google.com/+VeganOstomy Twitter: https://twitter.com/veganostomy Facebook: https://www.facebook.com/Veganostomy Please subscribe to us via YouTube or through iTunes. Other Podcast subscription options are available on our Podcast Page
In may, I was invited by Janssen Biotech, a Johnson and Johnson company, to attend Digestive Disease Week 2014 in Chicago and be a part of the IBDSocialCircle. The IBD Social Circle comprises of the leading IBD advocates Marisa Lauren Troy of JournalingIBD.org, Sara Ringer of InflamedandUntamed.com, Megan Starshak and Andrea Meyers of The Great Bowel Movement, Amber Tresca of About.com, and Ryan Stevens of CrohnsGuy.com The purpose of the IBD Social Circle is to bridge the gap between IBD patients, medical professionals like gastroenterologist, and Janssen. The video you are about to see was made while attending Digestive Disease Week in Chicago and gives you an insight on what we are trying to do. If you have any questions or feedback on this video I would love to hear from you.
After a small summer hiatus, The IBD Round Table is BACK for Episode 13. Ryan Stevens will tell us about his AMAZING swim across Lake Erie to raise public awareness for Inflammatory Bowel Disease… We’ll discuss the ALS Ice Bucket Challenge and if IBD needs a similar campaign… And the new CCFA PSA advertisement, is it better than the Escape The Stall campaign?? We also take your questions during the show! Episode 13 Panelist are Frank Garufi Jr., Sara Ringer, Marisa Lauren Troy, Ryan Stevens, and Sarah Choueiry
Sara Ringer from Inflamed and Untamed ( http://inflamed-and-untamed.com ) takes over the hosting duties of The #IBD Round Table Discussion and interviews me, Frank Garufi Jr. of The Crohn’s Colitis Effect ( http://cceffect.org ). You’ll get an in depth look at the life of Frank Garufi Jr. What life was like growing up for him.. What it’s like being the caregiver to his son Domenic who was born with Crohn’s Disease… What it’s like being IBD Advocate.. We also have a blind folded drawing contest and take your questions live during the show
We’ve got another exciting episode this month!!! We discuss #DDW14 ( Digestive Disease Week 2014 ) in Chicago, Janssen Biotech (makers of Remicade ) and the #IBDSocialCircle meeting, plus #WorldIBDDay 2014. Episode 12 Panelist are Frank Garufi Jr., Sara Ringer, Marisa Lauren Troy, and Ryan Stevens
It’s an episode of anniversaries!! Not only is the IBD Round Table turning ONE YEAR old, but The Crohn’s Colitis Effect is celebrating it’s 2nd birthday! Join myself, Sara Ringer of Inflamed and Untamed, and Sarah Choueiry of The Crohn’s Journey Foundation as we take a look back over the last year worth of discussion topics plus talk about if our thoughts and feelings have changed towards any of them. We’ll also be taking your questions and thoughts throughout the show too!
We’re starting off Season 2 with a great topic of Before, During, and After IBD Surgeries. Our panelist will discuss what to expect when having an IBD surgery, the emotional and mental aspects of an IBD surgery, plus answer our audience questions. Episode Ten Panelist are Christina Matthies, Sarah Choueiry, Frank Garufi Jr., and special guests Marisa Lauren Troy and Ryan Stevens
Sara Ringer – IBD Advocate, QUEEN of IBD Videos on YouTube, IBD Blogger extraordinaire, and co-host / panelist of The IBD Round Table Discussion joins me for a one on one interview. We’ll not only talk about her battle with Inflammatory Bowel Disease and her advocacy for the disease but also get to know the personal side of Sara. We start with her childhood and go all the way through to the present. Sara also answers your questions and comments!
It’s Crohn’s and Colitis Awareness Week in the United States and we couldn’t think of a better way to bring IBD Awareness than having a very special IBD Round Table episode. We talk about the differences between Crohn’s Disease and Ulcerative Colitis, Will IBD ever be a “household” name, The emotional and mental health issues that IBD brings, and so much more! A special thanks to the CCFA ( Crohn’s and Colitis Foundation of America ) for supporting this episode of the IBD Round Table Discussion and sending us our special guest Brooke Abbott IBD Awareness Week Special Episode panelist are Frank Garufi Jr., Sara Ringer, Christina Matthies, Sarah Choueiry, and special guest Brooke Abbot
It’s almost a week before Thanksgiving and we’re dedicating this episode to being thankful and what part IBD ( Crohns and Ulcerative Colitis ) plays in our Thanksgiving celebration! We also have a SPECIAL announcement that you won’t want to miss!!! Episode Nine Panelist are Sara Ringer, Sarah Choueiry, Frank Garufi Jr. and special guest Stephen Dempster
Diets and the Psychology of Eating is our primary focus in Episode 8. We explore the different types of diets that IBD patients sometime choose, the psychology around food and eating, plus how social functions can be particularly difficult for IBD patients when they are centered around food. Christina Matthies also gives us an update on her health and current lung condition. This show is dedicated to the memory of Kerri Jacobs. Loving wife and mother of two children who passed due to complications of Crohn’s Disease. Episode Eight Panelist are Sara Ringer, Christina Matthies, Sarah Choueiry, Marisa Lauren Troy, Frank Garufi Jr. and special guest Nysha Delhgren
Episode 7 talks about how we live our lives with Inflammatory Bowel Disease ( Crohn’s Disease and / or Ulcerative Colitis ). As summer has ended and we are now in Fall, how does the change of season affect our IBD and what about the Flu shot. We also take your questions and comments during the show. Episode Seven Panelist are Sara Ringer, Christina Matthies, Sarah Choueiry, Frank Garufi Jr. and special guest Stephanie Hughes
Episode 6 is a continuation on where we left off on Episode 5. We continue answering all the great questions you submitted, talk about the current status of each of our panelist health, plus talk about going back to school and IBD Episode Six Panelist are Sara Ringer, Christina Matthies, Sarah Choueiry, and Frank Garufi Jr.
Episode 5 is all about YOU, our faithful viewers. You submitted your IBD, Crohn’s, and Colitis questions before the show and during the live streaming and we answered them. Your questions were great and we thoroughly enjoyed answering them! Episode Five Panelist = Sara Ringer, Michael A. Weiss, Christina Matthies, Sarah Choueiry, and Frank Garufi Jr.
